• Peter Subrt - CNTRP Core 2 Manager

Announcing the launch of the CNTRP Patient Registration Database (PRD)

We are excited to announce the recent launch of the new CNTRP Patient Registration Database (PRD). Congratulations and a huge thank you goes to Dr. Kristjan Paulson, Core 2 Co-Lead, for leading the creation and development of the PRD in collaboration with the Montreal Health Innovations Coordinating Centre (MHICC).

The PRD is designed to help CNTRP investigators identify all patients enrolled in CNTRP studies, clinical trials, translational research, and health services research projects, and assign these patients a unique CNTRP identification number that can be used to follow our patients and track enrolment rates. The PRD requires the participation of all projects consenting human subjects and is part of the CIHR funding mandate for our network. The PRD will help us understand the activity of the CNTRP research programs and provide a means to enhance transplant registry research in Canada, through a link with administrative databases, and future correlative science through tracking any biomedical samples stored across the CNTRP.

The goal of the PRD is to provide a foundation for outcomes research using CNTRP patients, through data linkage with existing external registries, including:

  • Canadian Organ Replacement Registry (CORR)

  • Canadian Blood Service's (CBS) Canadian Transplant Registry

  • Canadian Blood and Marrow Transplant Group Registry

  • Other Provincial and National Administrative Databases (Canadian Institute of Health Information Discharge Abstract Database, Canadian Cancer Registry).

Training webinars will begin shortly and a live demonstration will take place at the upcoming CNTRP-CST Meeting in Quebec City next week.

For more information about the PRD and to start using this new tool, please contact Peter Subrt, Core 2 Manager, at psubrt@cfri.ca

screen shot from the recently launched CNTRP Patient Registration Database

#Core2 #PatientRegistrationDatabase #research

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